Monday, May 12, 2008

My boy is 11 months old today!!!

I was back from my U.S. trip on last Thurseday, Michael gave me a big hug when he saw me and kissed me. It's so sweet that he remembers me and showed very warm welcome back home.

I stayed at home for 3 days before I came back for work. How time flies. I took him out for fresh air and outdoor activities every day, he can ride the electronic horse and showed very big interest on the dogs. He chased the dogs on the lawn and yesterday stand on the window to watch the big dog for about half hour. sometimes he smiles with some voice. We have some familiy raises pigeons, flying over our apartment, Michael will look at them and track where are they. Such a nature as a baby, he loves the animals very much.

Friday, May 2, 2008

Welcome to Holland!

This article is really good and it addresses all the feeling I have after I had Michael born. Well, things will be better and I will enjoy Michael as much as I can. I feel very Happy with what I have.

WELCOME TO HOLLAND
byEmily Perl Kingsley. c1987 by Emily Perl Kingsley. All rights reserved I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

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I can't image that Michael almost 11 months old now. I still remember the overwelding emotion when I first delivered him in the hospital. I have been through all kind of emotion like guilty, sad, concern, worry even mad. He turns out to be fine till now.
First thing bother me is his right ear is a so-called "small ear" - Microtia, then I found out that he has Astresia (ear canal is closed)too. Next, the doctor suspected that his heart has a problem, and we went to have a color scan and 2 holes were found in his heart.Before he got 8 months old, the pediatrician found out that he is a little bit late development.I took him for hearing test for both ears when he is 6 months old, luckily he has very good hearing on his left ear and he will develop his language without hearing aids.During past 11 months, he has been very sick for twice, but recovered very well within one week.God bless that he will be fine and he will be doing very well day by day.
He is such a cute boy and I will not exchange him with anything and I never regret that I had him even he is less perfect. On the contrary, he is lucky because he has a mother like me that can find best care for him and will help him to go through this with strong will.
We chose to have Dr. Renisch in LA, california in U.S. reconstruct his right ear with Medpor and Dr. Roberson for Astresia repair. It will involve a lot of money, but I think my little boy - Michael worth it and I really want him to have a bright and happy life with confidence in himself.Another 2 years ahead will be full of challenges for us and we must be strong enough to support him and ourselves.